The National Spinal Cord Injury Statistical Center says there are approximately 12,500 new cases of spinal cord injury (SCI) each year and that about 276,000 people in the U.S. are living with a spinal cord injury.
Less than 1 percent of people who suffer a spinal cord injury experience complete neurologic recovery by the time they leave the hospital. About 45 percent suffer from some loss of movement or sensation in the arms, hands, trunk, legs and pelvic organs. Approximately 21 percent have incomplete paraplegia — some loss of movement or sensation in all or part of the legs and/or pelvic organs.
The spinal cord injury support group, “The Challengers at Montefiore,” meets at regular intervals to deal with issues occurring in the community as well as access and integration to other national and regional organizations.
Jim Cesario at (212) 824-8369 or Sugenny Flowers at (212) 584-2500
Meets: 1 to 2 p.m. on the first Friday of the month in the Do-IT! Conference Room at Outpatient Rehab.
The website says: “People with SCI, their families and friends are welcome to come and share their experiences, problem-solve and work together to empower independence and maximize quality of life after spinal cord injury.” Specially trained peer mentors with SCI/Disorder run each meeting.
Mark Herceg, Ph.D., (914) 597-2889 or Stella Marino, LMSW at (914) 597-2321
Meets:4:30 to 6 p.m. on the third Wednesday of the month in the Wood Pavilion, Bldg. No. 7, Harris Parlor
The Spinal Cord Injury Support Group is free and open to anyone in the community affected by a spinal cord injury, including patients, families and caregivers.
Matthew Castelluccio at 845-786-4950
Meets: 6 to 8 p.m. the third Wednesday of the month in the 2nd floor Dining Room
Among an array of support groups that are open to the community at Helen Hayes is the Spinal Cord Injury/Amputee group, which is open to individuals living with SCI and amputation, their families and friends. Meetings include guest speakers and open discussions, and are available via webcast.
The LISCIRC crisis team is prepared to visit with families, talk with them about their ordeal, and provide information about where to go for help with housing, wheelchair accessibility issues, Social Security, Medicaid, etc.
Tammy Bartoszek at (315) 464-2337 or Maria Froio at (315) 247-0927
This group does not meet on a regular basis. Call for information.
Lorraine Sawyer at (631) 474-6489
Meets: 6 to 8 p.m. in the 1st floor board room.
The group is for individuals with spinal cord injuries and/or disorders and their caregivers. There will be food and refreshments. Please RSVP.
63 West Main St, Suite H
Freehold, NJ 07728
WellSpouse groups provide peer support and education about the special challenges and unique issues that spousal care givers face every day. Find groups in New York.
Note that the circumstances of support groups may change with little notice. If your support group is not listed here or different information is appropriate, please contact the Hecht Kleeger & Damashek Spinal Cord Injury Resource Center to let us know.